Cysticfibrosis.com

We want to introduce you to an exciting new project we have launched at CysticFibrosis.com. After years of effort, we are proud to announce that we have partnered with technology platform Vaultt to help us share our much-needed personal health information...

Life-Changing News Hello there! I’m Zain Arif, a 19-year-old who’s been living with Cystic Fibrosis (CF) since I was just a baby. Being diagnosed with CF wasn’t easy, especially in a country where the disease wasn’t commonly known. But thanks to a determined...

Deciding to Get Pregnant The choice to have children is filled with uncertainty. What if my baby is born with higher needs than usual? What if I lose my income? How can I promise to provide for this child until adulthood when the future is so uncertain...

*Note from the editor: Meet Kevin, a 65-year old “Grampy” with Cystic Fibrosis! My first thought was: I bet he has some interesting stories to tell! Well, for his article Kevin submitted a delightful collection of interactions and hilarious anecdotes...

As a young child, I dreamed of one day having a little girl to call my own. I practiced swaddling and rocking my favorite stuffed animals all the while carrying her name tucked away in a secret place in my heart. Many years later, even as I found myself...